I haven’t posted in awhile I honestly don’t know where the last few months have gone . I’ve spent so much time in hospital and the days just go by before you know it another month has passed .
I had my auto stem cell in March and even though I was very sick at the start I recovered quickly . I was allowed home at day 16 which was fantastic . However two weeks later I developed a nasty infection from the line in my chest and so back into hospital for another week and a half . Then I was only out five days and had a meeting with my doctor in Cork . I was informed that the German team wanted me to have more treatment as the results from the auto weren’t low enough . So back into hospital for VTD
which was 72 hrs of continuous chemo . My blood counts then dropped and I had to stay in hospital waiting for them to come up again . Thank god I got out in time to celebrate my sons communion ๐
So after months and months of planning we are now in Germany ๐ฉ๐ช. I was told that I needed this treatment by the Professor in Galway who did my auto stem cell . My myeloma is very aggressive so the normal treatment isn’t enough for me . In Ireland they don’t preform allogenic transplants for Myeloma so I had to travel . I was so lucky to get government funding ( another battle but we got there in the end ) . We have rented a house over here and all my family are with me . I’ll be in hospital for weeks and have to stay close to the hospital for up to two months after .
I’m in the hands now of Prof . Einsele who in my mind is the Wizard of Oz he’s the one that will get me home . He has so much experience and his positivity is contagious. This is my chance and I’m going to get there .
I started last week with many tests they all went well thank god . Unfortunately trying to get a line in was not so good . On Tuesday they tried both sides of my neck but they weren’t successful due to blockages . Wednesday I had a line put into my chest only to find out after an x ray the line was misdirected into an incorrect vein . Needing to start chemo they put a temporary line in my groin so I was able to commence therapy . On Thursday morning they put a line in the right side of my chest and thankfully this has been working . So I’m now on day 4 and tomorrow I have 8 hrs of immunotherapy. I then have a days break and please god my donor transplant is on Wednesday .
I have a long tough road in front of me . At the moment I feel like I’ve met the Wizard of Oz but he has told me I have to back out and kill the witch !! Let’s hope I get through this and I’m back in the Emerald castle soon xxx ๐











